Saturday, December 31, 2011

The Measure of Hope


As we prepare to ring in 2012, I am looking back and thinking of all the things that Break the Grey did in 2011. How have we put hands and feet to our mission statement – to share the love and hope of Jesus Christ by serving, supporting, and encouraging families facing childhood cancer or other life-altering illnesses – for the last 12 months?
On Tuesday, February 15, 2011, we served approximately 20 families on the childhood cancer unit at Riley Children’s Hospital in Indianapolis, IN. We took gifts for the patients and their siblings, gift baskets for the parents, and food. We hung out, laughed, ate, played, and prayed with and for these precious families.
Break the Grey Party at Riley Children's Hospital - February 2011
 And then we did it again. On Friday, April 8, 2011, we served another 10-15 families on 7 West – the children’s kidney and cancer floor at Kosair Children’s Hospital in Louisville, KY. Again, we hung out, laughed, ate, played, prayed, and even painted pottery with families living in the middle of devastating childhood illness. 
But not before we stood up and spoke out. Break the Grey was a featured ministry in a chapel service at Anderson University in Anderson, IN on Tuesday, March 1, 2011. I had the awesome privilege of speaking to approximately 2,000 college students, faculty, and staff and making them aware of the reality of childhood cancer. More than that, I had the opportunity to demonstrate what is being done about it and to challenge them to do something not just with us, but also with and for the Kingdom of God at large. 
Break the Grey in chapel at Anderson University - March 2011
 In the summer, we hosted our first ever Christmas in July party – in August! The party was postponed due to construction, but Santa and Mrs. Clause made an appearance just the same. We did this event on 7 East, or the Outpatient Medical Observation (OMO) unit, at Kosair Children’s Hospital. This unit is where children in treatment for cancer, kidney disease, and a variety of other conditions go for chemo, dialysis, spinal taps, bone marrow aspirations, infusions, blood tests, and other procedures and treatments. Many children are there all day with nothing to do. We wanted to change that – to “break the grey” of a long treatment day, if you will. Santa – sporting flip flops, swimming trunks, and sun glasses, and accompanied by Mrs. Clause – brought some Christmas spirit: cheer, distraction, and presents to approximately 10 kids that day. (Unfortunately, the only pictures are on Santa’s cell phone.)
And then the holidays – Thanksgiving and Christmas. As in years past, we partnered with one of our families, the Smiths, to provide gift cards to families undergoing pediatric bone marrow transplants around Thanksgiving.  Then for Christmas, we were contacted by one of our families who had some needs for Christmas. Break the Grey volunteers responded and threw a Christmas party to show love to and provide for this family. 
Break the Grey Christmas Party - December 2011
 But Break the Grey is not about the events – what we do or what we say. It’s about loving people. It’s about the families whom we meet every single day.
In 2011, we loved and we lost. On Friday, February 11, 2011, 4-year-old Susana Whitaker finished her race and was made forever cancer-free in the presence of her Savior at 12:45 pm. 
Susana, age 4, praising Jesus - she met Him in February 2011
 Later, the Patrick family contacted us. 14-year-old Nick Patrick had an inoperable, malignant brain tumor. We sent care packages to him and his family in Georgia, and grieved with them when Nick went to be with Jesus on Sunday, August 28, 2011 at 7:16 am. Another southern family, the Thomasons, lost their 10-year-old son, Evan, to neuroblastoma after a 5-year battle on Thursday, September 22, 2011 at 6:40 am. 
Nick, age 14, with his family before he went to heaven in August 2011
 There were some triumphs too in our Break the Grey family. Two of our kiddos, Noah and Adam, completed treatment for cancer in 2011. Noah completed over 3 years of treatment for acute lymphoblastic leukemia, and Adam completed 18 months or so of treatment for medulloblastoma, a brain tumor. In October, Break the Grey provided “end-of-chemo” gifts to Adam and his family as a way to celebrate with them. And Michelle, whom we met a couple of years ago at one of our parties at Kosair Children’s Hospital, underwent a successful kidney transplant on November 1, 2011. 
Adam in his "I did it!" shirt just after his last chemo treatment
 In 2011, we did 4 major events. We made contact with roughly 45 families and tried to convey to them how much Jesus loves them. We had 3 families lose children. We had 3 of our children reach major medical milestones.
In some respects, looking at the above list, we did a lot. In others, we didn’t do enough.  The needs are enormous, and there were times in 2011 when our hearts broke and tears fell from our eyes because our love was bigger than our resources.
But how do you measure it, really? What really counts? Something tells me that numbers cannot accurately convey all that happened this past year. How do you measure these things: relationships, love, grief, courage, faith, or hope?
Maybe, for some things, words and numbers simply will not suffice. Maybe, for some things, actions and experiences are what count.
Maybe, at the end of the day – or the year, in our case – it’s not about how many families we served, contacted, connected with, supported, encouraged, loved, or didn’t; it’s not about how many events we threw, or didn’t; it’s not about how big our volunteer base is, or isn’t; it’s not about how much money is in our budget, or isn’t.
Maybe it’s about the families that we served, contacted, connected with, supported, encouraged, and loved – not how many. Maybe it’s about the prayers that were said both with and for our families. Maybe it’s the tears shed – in joy, in grief, and in solidarity with and for parents and children. Maybe it’s the willingness to serve demonstrated by our volunteers, no matter what form it takes: praying, hugging, shopping, organizing, wrapping, serving, holding, crying, reading, writing, speaking, giving, loving, smiling, laughing, listening, etc.
But mostly, I think it was about three things: faith, hope, and love.
Faith in a God who is good and who loves us beyond the capacity of human language to describe, and faith that when we can’t see His hand we can trust His heart – that He is with us and for us.
Hope, rooted in the cross of Jesus Christ, that screams in the darkest of places, “Yes – this is pain,” and “Yes – this hurts more than words can describe,” and “Yes – I would rather be anyplace but here,” and yet – “You, God, are still Good. You are still Glorious. You are still Awesome. You are still Deserving of Praise.” It is a hope that can stare down any moment. It is a hope that can celebrate. And it is a hope that can be fully present and alive - secure in the knowledge that because of the cross, Jesus wins in the end. And so do we.
And lastly – most importantly – love. A love for God and for people that cannot be quenched or squelched. A love that is big and loud. A love that moves from heart and head to hands and feet – beyond warm fuzzies to the nitty gritty. A love that will stop at nothing to make itself – the ultimate love found in the saving message of Jesus Christ – known: yes, even in the darkest of places and the hardest of moments.
My hope and my prayer – my “resolution,” if you will – for Break the Grey for 2012 is that our ministry will not measure itself in numbers. Perhaps not even in words, but instead will be driven by faith, by hope, and by love.
Oh, God, let it be true of us.
“Let the saving love of Christ be the measure of our lives.” – Chris Tomlin
Hoping, Believing, and Never Giving up,
Sarah

Friday, December 23, 2011

Emmanuel - God With Us

Last night was our Break the Grey Christmas Party. One of our families contacted me a few weeks ago requesting some help with Christmas. I let some of our volunteers know, and it culminated last night as we got together to finish up some Christmas shopping for our family and get everything organized.  Our volunteers went above and beyond what was asked and donated toys, gift cards, money, food, clothes, stockings, wrapping supplies, and time. It was the Kingdom of God - love and hope - personified. Christmas in action.

I've said it before, but Christmas is my favorite time of year. I just love the Advent season. Advent implies waiting for something expectantly and hopefully - our Emmanuel. God with us and for us. I just love that part of Christmas: that the boundless, limitless, timeless God who named the stars and knows them all by name considered our plight and climbed into time and space and human skin and lived with us and for us and then ultimately saved us. And that God - that Emmanuel - came to us last night. He was with us.

He was with us in the volunteers who took lists and money from my hands and fought traffic, cold, and rain to find the best gifts possible for this family.


He was with us in the generous amounts of gift cards and monetary donations that were given to help off-set the financial burden of a life-altering illness.

He was with us in one of our volunteers who, immediately after walking in the door, was sent back out again in the cold and rain on a hunt for candy for stockings - and did so with an eager spirit, a generous heart, and a smile on her face. [Then she wrote about it here - check it out!]

He was with us in the time we spent just hanging out, talking, snacking on hot chocolate and Christmas cookies, and simply loving each other with our words and our presence.

He was with us in the conversations about kidneys, medications, side effects, G-tubes, anesthesia, consultations, transplants, vomit, and lines.

He was with us in the mom who hugged my neck and cried.

He was with us as we loaded everything into their car - and packed it completely full.

God is here with us. He is love, hope, joy and peace, and He came for us. Hallelujah, we've been found!

Let hope rise. Let love be the difference.

Hoping, Believing, and Never Giving up,

Sarah



Thursday, December 15, 2011

Christmas Party

As Christmas draws closer, I hope you are all soaking in the wonder of the Advent season. It is always one of my favorite times of year! This year, Break the Grey has the awesome opportunity to bring the love, hope, joy, and peace of Christ associated with this season to one of our families - and you can help!

Break the Grey is hosting a Christmas party on Thursday, December 22 from 5:30 - 8:00 pm in the Corner Room at Graceland Baptist Church. We are getting together to bless one of our families and help them with some needs for Christmas. As we serve, we will get the chance to just hang out, enjoy community together, and celebrate the season. There will be Christmas cookies, hot chocolate, and music as we work.

If you can't make it to our party, please be in prayer for this family, as well as all of our other families. This time of year can be particularly tough, between expenses, new diagnoses, continuing with treatment as usual, making hard decisions, hoping for a better new year, or trying to celebrate the season without a much-loved child.

Please also be in prayer for our ministry. We are coming up on another busy season. Once Christmas is past, we will shift our focus to the upcoming annual parties in January and February at Kosair Children's Hospital and Riley Children's Hospital. Preparations are already underway for these parties and we are becoming excited!

As always, thanks for your support and I hope to see you at our Christmas party!

O come, o come, Emmanuel.

Hoping, Believing, and Never Giving up,

Sarah

Thursday, December 1, 2011

Give Love

I hope you all had a blessed Thanksgiving and are now enjoying the Christmas season! Christmas is always one of my favorite times of year!

Since I last wrote about a week ago, I have been made aware of an opportunity that we [Break the Grey] have to share the love and hope of Jesus Christ with one of our families in a very tangible way this Christmas.

I don't want to violate their privacy and give out too many details, but if you are interested in partnering with us to meet the needs of one of our families this Christmas, please e-mail me through the contact us page on our website here.

Don't forget about the other ways you can serve this Christmas season, listed in our last update! Please also continue to pray for all of our families, especially those who are facing the holidays without their child. As always, thanks for your support!

Hoping, Believing, and Never Giving up,

Sarah

Thursday, November 24, 2011

Praise God from Whom all Blessings Flow.

Happy Thanksgiving!

I've meant to write before now, but just haven't been able to find the time. First, some praise reports from some of our families over the past few weeks:

Michelle Schmitt had her kidney transplant on November 1! Her new kidney came from one of her best friends: a living, non-related donor. What a picture of the Gospel and Jesus' selfless love for us! Both Michelle and her donor, Crystal, are recovering well. Congratulations, guys! Happy Thanksgiving, indeed! Check out her story in the Southeast Outlook here.

Also congratulations to Adam Stoflet! He officially finished chemo, overcame another off-treatment hurdle/ICU stay, and is now, we hope and pray, on his way to a full recovery! His latest MRI a few days ago was No Evidence of Disease (NED - no cancer)! Please continue to pray for the Stoflet family.

Please continue to pray for all of our other families who are still in treatment or are dealing with chronic illness. Please pray specifically for a little guy named Kaden Book. Kaden will turn 5-years-old tomorrow and was diagnosed last Friday with B-cell acute lymphoblastic leukemia (ALL). His parents, Halie and Kevin, were youth leaders at my church when I was younger. Please pray for them as they begin this long cancer journey: for peace, strength, joy, hope, perseverance, and courage.

Second, besides praying for our families (which is always welcome and needed) you can help us partner with one of our families to bring the love and hope of Jesus Christ to families facing pediatric bone marrow transplants this holiday season! The Smith family's triplet son, Conner, underwent a bone marrow transplant at Cincinnati Children's Hospital four years ago - on August 17, 2007 - for a rare immune system disorder. Now, they collect gift cards every year around Thanksgiving and Christmas to donate to families in need during the holiday season. Conner's mom, Kristin, explains:

"Most of you know that our son Conner underwent a life saving bone marrow transplant four years ago. Even though we were there for months, we were lucky that he was hospitalized just a few hours from home. However, most BMT children must travel a great distance to a specialized transplant facility and are often hospitalized for many months. Unfortunately, many of these families don't have much support and most of these kids are separated from one of their parents and their siblings during the holiday season, which makes it even more unbearable. So, last year we decided to do a Gift Card Drive to collect gift cards to share with hospitalized BMT kids. The gift cards were used to help purchase Christmas gifts for the kids or help cover travel and lodging expenses to bring their families together for the holidays. Once again we've decided to collect gift cards for BMT families. If you are interested in helping these families and would like to send a donation or gift card please let me know or simply mail them to the address below.  No amount is too small, you can get gift cards in pretty much any denomination. Some suggestions might be cards for Target, Walmart, gas cards, Visa, American Express gift cards, etc.

Please let me know if you have any questions! 

Mail cards or donations to:
Kristin Smith
c/o Tecton
102 N. Third St, Suite 201
Lafayette, IN 47901

Thank you for your continued love, support and generosity over the years!"

 Conner with his siblings while undergoing a bone marrow transplant in 2007 - (L-R) Evan, Conner, Hayden, and Kelsey


There you have it! If you have any questions or have any other ideas as to how we can share the love and hope of Jesus Christ with families facing childhood cancer or other life-altering illnesses this holiday season, please contact us! We'd love to partner with you!

Take time to count your blessings and give thanks today and every day! Happy Thanksgiving!

Hoping, Believing, and Never Giving up,

Sarah

Thursday, October 6, 2011

Congratulations!

Recently most of my posts have been asking you to pray or telling you about hard things that our families are facing. Tonight, though, I'm posting about good things that are happening! Congratulations to Noah and Adam!

Noah had his port removed today following over 3 years of treatment for acute lymphoblastic leukemia. Congratulations, Noah!

Also, Adam was discharged from 7W this morning following his very last inpatient chemo treatment for brain cancer! Adam still has one more chemo treatment to go - an outpatient IV push - on Tuesday and then he will be finished with cancer treatment, hopefully forever!

Please take a minute to say a prayer of thanks on behalf of our families! Congratulations, guys!

Hoping, Believing, and Never Giving up,

Sarah

Friday, September 30, 2011

Far From Over

Today is September 30: the last day of childhood cancer awareness month. But for families of children with this disease - and those of us who are choosing to walk beside them - it is far from over. We are aware of childhood cancer 24/7 whether we like it or not.

So much has happened this September even just within in our Break the Grey family: so many families struggling. Childhood cancer is brutal and it is ugly. One morning this month I was walking to school and just thinking about and praying for our families. So many of them were weighing heavily on my heart. I did what I do so often to try and clear my head and express myself: I turned on music.

The song I was listening to was called "The Power of Your Name" by Lincoln Brewster. The lyrics described exactly what it is Break the Grey is about, and why we are working towards awareness; why we choose to walk this journey with our families; why we don't give up.

Ultimately, at the end of the day, we do what we do because we love Jesus. Our goal is to love Jesus by loving on families of kids with cancer or other life-altering illnesses, and to see His Kingdom come in our lives and in the dark places in which we walk. That's why the chorus resonates with me:

"And I will live
To carry Your compassion
To love a world that's broken
To be Your hands and feet
And I will give
With the life that I've been given
And go beyond religion
To see the world be changed
By the power of Your name"

That's what we're about. Loving hard. Ushering in a Kingdom. Glorifying Jesus.

Listen to the song here:


And please, please, please, don't let this be the end. Just because September will end in a few hours doesn't mean that childhood cancer does. Please continue to pray for our families. Please continue to pray about what you can do to love Jesus - whether it involves our ministry or not.

Because the fight - against childhood cancer, with and for our families, and for a Kingdom - is far from over.

Hoping, Believing, and Never Giving up,

Sarah